Welcome to our Webster Family website

In memory of our daughter, Grace, who passed away in 2011 from SUDEP as a complication with hypothalamic hamartoma, a brain lesion and epilepsy disorder.

Family | We Live, We Laugh, We Play, We Love

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Captured Moments

Photography is a way of feeling, of touching, of loving. What you have caught on film is captured forever… it remembers little things, long after you have forgotten everything. {Aaron Siskind}

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Memory Keeping

Our life through my eyes. Just as pieces stitched together in a quilt warm our bodies, scrapbooks bind together memories to warm our hearts.

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This is Grace’s story and by sharing it we hope her memory will continue to make a positive impact the lives of others suffering with hypothalamic hamartomas, epilepsy, diabetes insipidous, and cognitive disabilities.

Hope For HH

Hope For Hypothalamic Hamartomas, a volunteer-based nonprofit organization founded by parents of children with hypothalamic hamartomas (HH).

Giving Back | Organizations We Love, We Support

Hope For Hypothalamic Hamartomas is a volunteer-based nonprofit organization founded by parents of children with hypothalamic hamartomas (HH). Our goal is to create a single, credible source for information about the diagnosis, treatment, and support of individuals with HH. Every family touched by this rare disorder has a unique and often heart-breaking story of how they attained a correct diagnosis. Click here to learn more about Hope For HH

The Alyssa Araiza Wings of Angels Organization honors the courage of Alyssa Araiza, a young girl who waged a battle for five years against leukemia, the cancer that would eventually take her life shortly after her ninth birthday. Click here to learn more about Alyssa Wings Of Angels

The Semper Fi Fund, and its program America’s Fund, provide immediate financial assistance and lifetime support to post 9/11 wounded, critically ill and injured members of all branches of the U.S. Armed Forces, and their families, ensuring that they have the resources they need during their recovery and transition back to their communities. Click here to learn more about Semper Fi Fund