http://www.webstersdesign.com/websterblog Sat, 12 Jun 2010 03:10:45 +0000 http://backend.userland.com/rss092 en When Grace was initial diagnosed, the information on HH was limited and when you did an internet search on hypothalamic hamartomas it returned less than 10 results.  We had been told the condition was rare, but it wasn't until we began our search for answers did reality hit us. I'm happy ... http://www.webstersdesign.com/websterblog/2010/06/11/hope-for-hypothalamic-hamartomas-our-nonprofit-has-finally-launched/ We just wanted to send you a personal note to thank you very much for your donation to Wings of Angels.  This year’s annual bowl-a-thon raised approx. $22,000 to help the families of children w/ life threatening illnesses that require travel for their treatment. With your ... http://www.webstersdesign.com/websterblog/2010/04/19/wings-of-angels-success/ It is that time of year again for the Alyssa Araiza Wings of Angels Bowl-A-Thon. This year they will be helping the parents of eight year old Logan Thompson who has been diagnosed with Burkitt’s Lymphoma.   Logan has been hospitalized at Sutter Memorial in Sacramento since his diagnosis in November of ... http://www.webstersdesign.com/websterblog/2010/03/17/we-still-need-your-help-march-27th-fundraiser/ It is that time of year again for the Alyssa Araiza Wings of Angels Bowl-A-Thon. This yearly event is their primary fundraiser so they can continue to assist, currently 24, families with children with cancer or serious illness who are required to travel from the Redding area for treatment. They ... http://www.webstersdesign.com/websterblog/2010/03/11/yearly-fundraiser-team-webster/ Is it really almost March 2010?  Honestly, we can’t believe how quickly the days and months seems to be flying by this year. We are continuing to work with the doctors and the school in regards to Grace and the episodes of seizures, depression and rage like behaviors.  Things are progressing, ... http://www.webstersdesign.com/websterblog/2010/02/23/grace-update-and-annual-bowl-a-thon/ It took a bit longer than we had hoped, but we’ve received Grace’s VEEG results. After 50+ hrs of being hooked up and us witnessing over 12 *episodes*, the EEG is inconclusive. The good news is no seizures showed up on the EEG, the bad news is no seizures showed ... http://www.webstersdesign.com/websterblog/2009/11/11/veeg-results-and-heading-back-to-sacramento/ Grace has been doing much better since she's been back on her anti-seizure medication.  The episodes/explosions of anger are very seldom and it's making school and home much more enjoyable for her.   We do continue to see what seems to be involuntary actions/movements and are not sure what is causing ... http://www.webstersdesign.com/websterblog/2009/09/08/heading-to-sacramento/ It has been awhile since our last update and with the recent events we wanted to make sure all of you knew what was going on with our little Grace. We had weaned her off 1 of her 2 anti-seizure meds last November and it went extremely well. We decided to ... http://www.webstersdesign.com/websterblog/2009/08/26/a-bump-in-the-road/ It's so hard to believe, but it's true!  Grace is officially 2 years post op and continues to be seizure free.  This is a huge milestone for her and moves us much closer to our hopes that she'll be seizure free for the rest of her life.  We wanted to ... http://www.webstersdesign.com/websterblog/2009/04/21/we-hit-the-2-year-mark-and-grace-continues-to-amaze-us-all/ Wings of Angels Bowl-A-Thon Update On April 4th we participated in the Wings of Angels Bowl-A-Thon.  This was our third year in taking part in this fantastic fundraiser and we're happy to report our Webster Team raised over $2000 this year.  Perry's mom ended up winning the most money raised for an ... http://www.webstersdesign.com/websterblog/2009/04/14/2009-wings-of-angels-bowl-a-thon-was-a-success/