It took a bit longer than we had hoped, but we’ve received Grace’s VEEG results. After 50+ hrs of being hooked up and us witnessing over 12 *episodes*, the EEG is inconclusive.

The good news is no seizures showed up on the EEG, the bad news is no seizures showed up on the EEG.

No seizures showing up means Grace is not having the complex partial seizures that she had pre-op. This is truly fantastic news, but unfortunately both our local doctor and the neurologist in Phoenix did see the *episodes* while watching the video images. The problem is there was no corresponding seizure activity captured, so as a result the VEEG as a whole is inconclusive. These episodes could be caused by many things, including seizure activity (too deep in the brain to register on the EEG), hypothalamic rages, or a result of the traumatic brain injury as a result of the invasive surgery.

It’s almost as we are back to those initial days after Grace was diagnosed when we were trying to make sense of it all. Once again we don’t have a clear understanding of what is causing these *episodes*. I truly believe Grace has started to have gelastic seizures, but they’ve changed from what we typically saw pre-op. She now simply has moments she ‘checks out’ for a minute or 2 and then is very disoriented afterwards. She’s also having the more aggressive outbursts which bring back memories of the rage attacks.

Grace is now back on Keppra. She’s actually taking more than she did pre-op and it seems to be controlling almost all of the rage episodes, however, she continues to have the other type of episodes when she ‘checks out’. We are hoping right now that the Keppra continues to work, but realize based on our previous experience that we’ll probably have to modify meds at some point.

Tomorrow, we leave for Sacramento so Grace can have the Supprelin Implant put in on Thursday morning. This will eliminate the monthly Lupron injections, which causes Grace so much anxiety and days of leg pain. We have also noticed that Grace has more *episodes” right before and after her injection.  We think this is due to shifts in her hormonal balance. The implant should reduce hormonal mood swings associated with the Lupron injection and subsequently we are hoping that Grace will no longer have the increase in episodes she’d experience every 28 days. The procedure is fairly quick but Grace will be sedated. Please keep her in your prayers.

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